NCD Narratives

In the rural district of Neno in the Southwestern corner of Malawi, most community members are subsistence farmers. While the district of Neno has developed in the last few years, poor, rural communities face challenges in accessing healthcare, especially during the rainy season. Partners In Health (PIH) has been working and partnering with the Malawi Ministry of Health since 2006 in Neno District, where they have been supporting the expansion of integrated non-communicable disease (NCD) services at the community and clinic level.

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Treatment of type 1 diabetes involves daily injections of insulin, regular exercise, proper nutrition, and emotional support. This is a huge responsibility for anyone, even more so for a young child. When a child is diagnosed, the entire family is affected as everyone must adjust to a new way of living. With the right level of support, family members can play a central role in helping their children manage their treatment with confidence. Christian has type 1 diabetes and was diagnosed at the age of three. Getamesay has adopted his son’s lifestyle and has created a home where diet and Christian’s daily treatment needs are routine. But it was not an easy journey.

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One morning in April 2012, Funani Juliet was having breakfast in her Pietersburg, South Africa, home when food started to drip down the right side of her face. Her lips couldn’t hold what she was eating. The retired primary school teacher looked in the mirror and saw nothing odd, but called a friend right away. The friend wanted to take her to a doctor, but Funani opted to go to church to pray. But soon her face started to shake and became contorted to the right side. When she went to the doctor, she found out she had hypertension and high cholesterol.

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When Ronaldo Jose Pineda Wieselberg was two, he told his mother he wanted to be a doctor. A math teacher, she went back to correcting papers, and he returned to his cars and jigsaw puzzles. Two weeks later, he was diagnosed with Type 1 diabetes. Instead of an obstacle, the disease just cemented his decision. Now 24, the Brazilian native is a medical school grad, an intern at Holy House of Mercy in Sao Paulo and an aspiring endocrinologist.

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This is the story about Bruno Carrattini, a young man from Uruguay who has been living with a non-communicable disease (NCD), type 1 diabetes, for 12 years. Today, Bruno has the knowledge and tools needed to have control over the disease, but this was not always the case. Bruno comes from a big family – he and his twin brother are the youngest of seven siblings. His mother is a public school teacher who always made sacrifices to support their family and his father, who was a public servant, died of a brain tumor when Bruno was 16 years old. This tragedy forced Bruno to start working at a young age to contribute to his household’s income since the family was practically bankrupt. But he never left school; Bruno continued to work hard to graduate from high school while helping his family, until one year later, when he turned 17, and Bruno was diagnosed with type 1 diabetes.

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On the benches in the central waiting area of the Tsopeng health clinic in Lobatse, a shy, soft-spoken mother of three waits to see a doctor. This morning, Kutlo Nkuetsho traveled by bus to Lobatse – a sprawling town in Botswana, encircled by hills, close to the border with South Africa – prepared to hear bad news and convinced that she had cancer.

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